When it rains, it pours!

Hard to believe it is only 2 days since the last update! So much has happened!

To start off, on Thursday into Friday night, I woke up too many times to pee, and the last few times, it was as if someone had placed a cork in my penis – nothing would come out! So at 3 AM, Antonio and I headed to NYU Hospital Emergency Room where we spent 5 hours. They put a catheter up my penis to relieve the pressure and drain the urine and when they did an analysis of the urine, it turned out to be infected and so they gave me an intravenous drip with antibiotics and I now will continue with pills for 2 weeks – luckily, this is not something that will interfere with my medications for the radiation and chemotherapy.

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On another note, last Monday, I had gone to see Dr. Kim, my GP and he did a PSA test (http://www.cancer.gov/types/prostate/psa-fact-sheet) for my prostate and my PSA was off the charts at 20.4! Last time I was tested it was under 4. Needless to say, I was alarmed and set up an appointment with my urologist Dr. Aaron Katz, Chairman of Urology at Winthrop University Hospital, Professor of Urology at Stony Brook University School of Medicine and an attending physician at Winthrop Urology (http://winthropurology.com/dr-aaron-e-katz). I will see Dr. Katz on Monday. In the meantime, we canceled our trip to Fire Island for the weekend and while disappointed, I am walking around with a bag to drain my urine until I see Dr. Katz and it is not the most comfortable thing to say the least. I suspended radiation on Friday, but will resume on Monday.

I was having trouble with people signing up to accompany me to radiation therapy, but think that is finally solved. Thanks so much to those of you who have signed up – there are only 2 open days now: June 16 and 17. If you can make wither or both of those dates, you can sign up here. (http://doodle.com/poll/6q979wb7rpe5gsee)

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Wednesday evening, Miguel and I met for his birthday dinner. It was great to just have a one-on-one with him and catch up on life, relationships, future plans, etc.

Antonio is my Knight in Shining Armor! He returned from Spain on Thursday and he is there for me in ways you cannot possibly imagine – helping me with my catheter, with my meds, massage, kisses, in the hospital…. Who could ask for anything more?

P.S. This will likely be my last email update – the blog is ready to go live! If you want to see the news as it develops, please subscribe by clicking here (http://alansbrainblog.com). You can see the old entries from day 1 and enter your comments after each blog entry.

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8 thoughts on “When it rains, it pours!

  1. It took me a full day to process your latest update, especially the PSA results. You are very brave and extremely focussed. Im so glad that you've immediately made an appt with Dr Katz. To do that after finding that you have an infection takes a lot of effort.
    I can't imagine that you found the time and energy to create your blog but you have. I so admire how you are keeping all of us close to you as you are treated. That cant be easy.
    Im so glad that Antonio is there for you. Being surrounded by love is so important when you are ill
    Know that I send you suppotive thoughts everyday.

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  2. Hi Alan, once more I am shocked at the news. I do hope that the latest problems will clear up with the antibiotics and that you will be able
    to concentrate on your brain. Thank God Antonio was back and he was able to go with you to NYU emergency.

    I tried to sign up for June 16 but I thought someone had already signed. Anyway just to remind that if you need me, I am here any time except
    from 5 - 11 June. Just call.

    I have signed up for the blog and look forward to follow your progress.

    Love to you and Antonio.

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  3. I've been thinking of you… And I'm sorry to hear about your PSA levels, pain and need for a catheter! but sounds like you'll be in very good hands with Dr. Katz. I switched to see David Kim this year. I like him. And I like the functioning of the office! The most professional GP office I've ever been to!

    Did you happen to catch the 60 minutes episode last week where they've been using the polio vaccine to combat brain cancer? It was a very interesting segment and I'm sure you can find it on the CBS 60 minutes site.

    I still would love to see you so I'll be keeping in touch to see if we can make a plan!

    I hope all goes well with Dr. Katz!

    Love and blessings!

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  4. Oh my dear Alan, I am so ssorry and sad that you have to go through this. I know how courageous and inspirational you are and you are in my thoughts and prayers. I signed up for June 17 so at this point it looks like your radiations are all taken care of. Just a testament to how many people love you and rooting for you. I hope the remainder of the weekend is not too uncomfortable. Sending you love and a big hug.

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  5. So sorry to read about this but glad you are taken care of and that you also have a full schedule with people accompanying you to all appointments.
    I will read the blog with interest - been really swamped since I got here (am in Manta) and found this assignment challenging but trying to do something good and reading you is inspiring.
    Sending you love from Ecuador.

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  6. OMG
    omg
    OMG
    omg
    ALAN
    enough of the pouring rain!

    Sending LOVE and HugS!

    HANG IN THERE BUDDY!
    And rest rest rest..

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  7. Yikes, crazy!! Keeping you in my thoughts and sending positive vibes. If you need anything while I'm in town, even if it is a foot massage or a fruit smoothie, let me know! I'll be in NYC May 26-30 dog sitting for Wes.
    Hugs
    Marko Domannovitchski

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  8. Sorry I’ve been MIA. My brother and sister-in-law have been in NYC helping me clean out my mom’s house for her upcoming move. So things have been hectic here. I was waiting to sign up to escort you till I had a clearer sense of my work schedule and moving schedule coming up. And I guess I missed a great many opportunities to sign up. I’ve taken June 16th. June 17th is a question mark at the moment. If no one else signs up for that I will re-arrange my schedule and I will definitely be there. I’ll keep an eye on it. If for some reason someone else can’t do a slot or two that they’ve committed to, I may be able to fill in. If you ever know that’s going to happen, please let me know. I should have more flexibility with my schedule mid may to mid June. It will get tighter after that.

    I will be back in the city on Monday the 23rd for work for a few days. I will give you a shout. I’d love to see you. I’m thinking of you and sending you love. I’m signed up for the blog now so I’ll be updated when you update.

    Feel better from the infection. I’m am sending you and Antonio love.

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